It's another story for another time. The empty space here in 'ramblings' is almost a year of big personal life challenges and changes. I had three shunt surgeries following last year's retreat, and God made the way for my family and I to move to Tucson, Arizona last August.
I've seen miracles.
This desert life has made me more well in so many ways, and it's stoked the fires of my dream to build a non-profit here and run a full time respite house for my EDS warriors. This is hard work with many steps. In the meantime I'm being called to continue Option EDS - the retreat in Corolla.
The retreat will look different this year. Four families are invited as well as a very special women who is an angel to our community. Out of the seventeen people there are seven children and three mamas with EDS. I am going to be sharing the stories of these families over the next few days.
If you are reading this and you or someone you love lives with EDS and the many comorbid conditions it brings know I wish I could invite every one of you. I want to open the door wide and give a place to exhale in all the hard. I believe this bigger place will happen. I believe there will be more rooms and more funds and bigger community. Sign up for updates here and hold on.
Many of you gave and supported the first Option EDS - the retreat in Corolla, NC last May. Your kindness made all the difference. I NEED YOUR HELP AGAIN. The beautiful beach retreat home, Sandy Toes & Salty Kisses, is once again donated by Healing Hearts Respite Foundation. We are hosting four EDS families the week of May 25th-June 1st.
Please consider donating to help us:
-Give the couples each a date night at The Blue Point
-Give the families a grocery stipend to help with food costs for the week
-Give the group a memorable low country boil as a fun community dinner the last night of the retreat
-Rent beach chairs and umbrellas for comfortable days by the ocean
-Provide other general household needs like paper products, detergent and bottled water
You can easily donate through this link to Healing Hearts secure donation page. All donations are tax deductible.
We are expecting miracles!